So I said in an early post that I had undergone some ICP ops, but i didn’t tell you what the first one lead too. The reason I had it was because I was still experiencing some major head pain whilst being upright and my surgeon suggested that the problem was that I had been used to a high pressure for such a long time that I was finding it difficult to adjust to a “Normal” and safe pressure. He said that Shunt was working but he waste to check the exact pressure i was running at so he could determine what to do next. After the ICP gave him the info that he needed he suggested that i get a flow restrictor fitted in my neck.
The Flow restrictor is a device that gets fitted to part of the tubing thats attached to your shunt and slows the flow of CSF down. It is gravity feed so only works when I’m stood upright. This was hopefully going to make me feel much better.
I had my flow restrictor fitted under Local Anaesthetic so was awake for my op but I believe they can put you to sleep if need be. what they did was numb the area of my neck where they were going to operate. They cut a small hole in my neck cut through my shunt tubing and plugged the restrictor into both ends of the tubing. I didn’t feel pain as such during most of the op I did however feel lots of tugging on my shunt and could feel it in my head. I also felt the most strange feeling when they plugged the end of my shunt back into the tubbing. It was a sort of sharp pain that shot up into my brain but went away within seconds. I was then stitched up and after spending the rest of the day in the ward was discharged from hospital.
The flow restrictor has certainly helped with the pain i was experiencing when stood up right as I can now stand and sit upright all day if I want too, I do still have a long road ahead though as currently still suffer with daily headaches, Shunt pain and migraines.