“We’re transferring you!”

Not the words I was expecting.

I was taken to my local A&E after passing out in my home. I had been suffering with a chronic headache for what seemed like weeks, but Ive always suffered with headaches since i could remember so i thought it would eventually pass.  The doctors had found out that I had an infection so was treating me with some local antibiotics whilst they did some further tests such as blood tests and CT scans.  The doctor told me that he also wanted to do a Lumber puncture which is a procedure that involves a needle being inserted into your spine so that they can take a sample of CSF (cerebralspinal fluid).

After the test was done I had a panic attack and fell asleep.

When I woke up my wife was there and I remember telling her that I was felling bit better and that I might even be able to come home soon, I was wrong.

That was when I was told that I was to be transferred from the hospital to another hospital that had a specialist neuro unit.  This news terrified me and I thought the worst.

When I arrived at the other hospital I had some further tests that included two MRI scans that lasted nearly 2 hours in total before being told that I had hydrocephalus and would need surgery.

The day after being told I remember sitting on the bed and staring at the floor just thinking.  Thinking of how my life was going to affected by this news.  Thinking of the family that were waiting for the news.  My wife and two children that I loved and missed.  I hadn’t seen the kids in weeks.

I was then taken for my operation.  A VP Shunt was inserted just above and behind my right ear.

When I returned to the ward I felt awful.  I was in the worst pain imaginable and was sick several times.  The pain was worse when I was upright either sitting or walking so was given along with the usual pain relief like morphine, some anti-sickness tablets.  I was showing no signs of improvement so was told that I would need a Lumber puncture to check my CSF pressure.

The Lumber Puncture did not go well.  The doctor that was attempting the procedure could not locate the area of my spine where the needle needed to be and the pain this lead too was excruciating.  After a few attempts she decided to stop the procedure.  Where i was in so much pain I didn’t want another attempt to be made but the doctor said that I had no choice so I was given a sedative to help me relax as a different doctor got prepared for the second attempt.  The second attempt was just as if not more painful than the first especially the moment where he hit a nerve and what could only be described as a strange and painful sensation shot down my back and into my left leg and ended in the tip of my toes.  It felt like my leg had been blown off.  Soon after the doctor found the point he needed and was able to take a sample of my CSF.

With the results of both my CSF reading and some X-rays of the Shunt the doctors said that the surgery was a success and as soon as I passed the pysio test I would be allowed to return home to complete my recovery.

I just about managed to do the pysio requirements needed for me to return home because I was desperate to get home to my family.  The journey home was hard as I was unable to sit upright for more than 15 minutes or so without experiencing pain, but we eventually made it.

I got home and went straight to bed, (I had less pain when lying down) whilst my wife got the kids.  As soon as I saw them I burst into tears.  I knew I would have a long journey ahead of me to recover but with my friends and family now close by I was going to be more comfortable.  Below is a photo taken just before my staples were to be removed.

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